Neurofibromatosis type 1 treatment

We found 39 clinics & 104 doctors for Neurofibromatosis type 1 Worldwide. AiroMedical ranks among 444 hospitals based on qualification, experience, success rate, and awards.

Neurofibromatosis type 1 is a genetic disorder when tumors grow on the skin and along nerves. Usually, the formations are benign. Treatment includes surgery and sometimes chemotherapy. Newly developed drugs are the additional options.

Neurofibromatosis type 1 (NF 1) develops gradually over many years. Three main symptoms characterize the disease:

  • Multiple nodules varying in size (neurofibromas);
  • Brown spots on the skin;
  • Small swellings on the iris of the eyes (Lish nodes).

Tumors grow uncontrollably along the nerves, causing pain, cramps, and decreased sensation.

Type 1 NF is the most common form of neurofibromatosis (about 90% of cases). Usually, the disease is inherited from one of the parents, but sometimes it can occur spontaneously.

There is currently no complete cure for NF1. Treatment includes regular monitoring and management of symptoms. Doctors can surgically remove tumors. Neurofibromas that grow fast must be removed, as they may become malignant. If NF 1 causes a brain tumor, oncologists resort to chemotherapy. Some medications relieve pain. There is a newly invented drug therapy that stops the progress of the disease.

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6 countries and 22 cities for Neurofibromatosis type 1